All the Acronyms

My life is full of acronyms: ASD, IEP, IDEA, SPD, and they’re all quite useful, if you know how to work within the system. Unfortunately not everyone does and the system makes it as difficult as possible to get anything done. I am constantly surprised by how easy I’ve had it. I’ve never had a contentious IEP meeting. We’ve had some teachers who weren’t suited to dealing with my kids but honestly, super easy go of things and I am so very grateful for that.

But apparently my situation is more unusual than it should be. I’ve heard horror stories at my support groups (online and real life) about schools that refuse to do what they’re supposed to do. My kids have it easy because I know the vernacular, the law, and how to talk to people and because I don’t work a standard job, I have the availability to be at meetings, to pester with phone calls, and touch base with email. It makes me wonder how many kids slip through the cracks because their parents do have jobs and can’t be on top of the school all the time or fight tooth and nail to get the evaluations and services their kids need.

The system should not be so difficult to navigate and the plan should not be so difficult to enforce as it can be. Yes, budgets must be taken into account and parents need to be reasonable too but not at the cost of the child’s education. We are losing some bright minds along the way by treating them like problem children or behavior issues rather than people and that’s got to stop. I don’t have any answers or solutions but it all makes me so sad to see.

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Filed under Autism, kids, Life, Parenting

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