Category Archives: Rheumatoid Arthritis

I Peopled Again

Tekko 2018

Sort of. I didn’t meet any celebrities or get anything signed but the family and I went to Tekko over the weekend. Read about most of it over at The Geek Girl Project. We had a really great time. My anxiety was behaving itself and I think I only had one little minute of tension that I thought was going to bloom but the Litany came to the rescue and all was well again. My RA however was not so kind.

I was on my feet most of the day and, even with my cane (which actually got complimented a couple of times), I was really struggling by the end of the day. I say the end of the day but we were only there until about 3:30 or so. We were there for about 6 hours and I’m still paying for it today. Absolutely worth it!

The kids had a blast, I had a blast, I’m not sure about the husband but he must have been having at least an ok time as he went back the next day with the older child so the older child could go to some panels which we didn’t get to do on Saturday. Next year I want to try and see some panels, especially if they are similar in nature to this year’s panels. The one I’m most upset about missing though was an entire panel on cosplaying with chronic pain.

Part of this convention was a happy birthday to me sort of thing and I bought a few things with my birthday money – I probably don’t need any more art or a cute little dragon friend but birthdays aren’t just for things a mama needs. Plus, I think I found my new favorite artist. Listening to her talk about color choice and characterisation was interesting and awesome. Definitely a kindred mind where that sort of thing goes where visual art is concerned. If you get a chance, you should check her out – her Jareth was what I could not leave without: Kaysha Siemens. And I found the artist that did the mystical Nicodemus type rat my husband brought me home the last time they went! I need to get a few more frames and reorganize my wall now.

One thing I noticed that while I understood, it made me very sad, when I was looking at the cute little dragon creatures, the artist had a prepared speech about why they cost what they do, the time it takes to make them, etc. I should have said something then about not needing to explain that but just because I get it doesn’t mean the next person will. It’s just a shame people don’t value art and books the way they do their fancy over sugared coffees.

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Filed under Convention, Event, Geek, Parenting, Rheumatoid Arthritis

Lost Days Again

Well, mostly just yesterday but it feels like I lost so many days. I spent most of yesterday curled up on the couch, asleep or close to it. I got words to an extent but it was mostly research and notes on something I’ve been meaning to do for a good long while. I couldn’t have focused on anything else. I’ve got a book I’m reading so I can review it and I couldn’t even focus well enough for that! I’m hoping to get that wrapped up by the end of the weekend and an article about Tekko also. It’s amazing how much it can feel like one off day has set you back even though it didn’t. It does mean that I’m going to have to get extra words over the next few days as I don’t see a lot of writing happening over the weekend – they’re always harder to manage anyway what with things to do, places to go, people to see.

Just out of curiosity today, I was flipping through super easy cosplay ideas (none of which are actually easy people!) and I’m really annoyed that none of the interesting female characters wear jeans. It’s just annoying. I don’t have the time, desire, or inclination to spend a great deal of time at the sewing machine right now so, no costuming for me. I do like the idea of it but not the time suck or the skill level the things I’d want to do require. I guess I can’t put off the writing today after all and I should really get back to it. If I can have ten minutes where the dog is not wanting me to do all of the things.

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Filed under Life, Rheumatoid Arthritis, Writing

March Wrap Up and April Goals

Happy Easter!

I can’t believe I’m still managing to get words counted! I’ve always struggled to maintain any sort of accuracy in counting but this Excel file is just about perfect for me.

On the writing, I missed 4 days and had a few under 500 days but I was very consistent overall. 35,417 words for the final tally for March, not quite to my goal and only 200 words better than February but, I’m still very happy with it. I got words in on all my projects but I don’t see that happening next month. My goal is to get Christmas in Bear Ridge zero draft done next month and I’m not super worried about anything else. Word counts are awesome and I’d like to stay in line if not do better than the last two months.

On the fitness front – I didn’t gain any weight so that’s not terrible. I didn’t lose any either though and that’s kind of annoying. I loaded up the MyFitnessPal app again and I’m trying to be good about it. I don’t always succeed but oh well. I’ll get there. I am moving more. This month there was a lot of heavier foods and too much eating out. I did get my stretching bands washed because they made me itchy and I’m able to do the steps a little bit better but in the biggest news, I successfully got up off the ground by myself. I would like to lose weight as I’m sure everything will be easier if I do but I’m not going to be miserable in order to do it – Calories In, Calories Out. That’s about all I have the tenacity for right now.

On the Rheumatoid front, I did spend a chunk of this month with my cane – my ankle did something ridiculous for no good reason and swelled up again for a few days, my knees were a bit achy, and some mornings, my feet were flat evil. My husband bought me a new cane – pretty much a length of knotty, maybe burled wood with a lot of character and a pretty grain with a natural grip and a height that works for me. I love it. My skin is still stupid splotchy, irritated, and now a little angry in spots. Yay makeup. Mostly, my meds are doing what they’re supposed to, even if it isn’t perfect. There are still days but I think that’s just going to be a thing now.  It’s mostly pretty liveable but I’m still adjusting. My short term memory is still really stupid so I’ve been using a to-do list app to keep me on track and on target. It mostly works too! Any.do links up with my regular and Google calendar and makes my life much easier.

I didn’t get any art made this month but I thought about it and I planned some out in my head. Well, no, I did dye eggs. I’m totally going to count my six shaving cream and food coloring eggs as art. I had wanted to do more but it just wasn’t in the cards for me. April. Definitely April.

On the personal front, it was sort of a big month – I saw an old friend I hadn’t seen since the summer of 98, my oldest child got inducted into the National Honor Society, I had my annual meeting at the school for my youngest child’s IEP (always nerve-wracking, almost always easy), and, most importantly, celebrated my 18th wedding anniversary. I still can’t believe he’s put up with me this long – he must be crazy. Next month should be a lot slower so hopefully that means also more productive too.

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Filed under Anxiety, Interesting, Life, Rheumatoid Arthritis, WIP, Writing

Doing it Anyway

This last year has really been all about learning to do things anyway – even when I’m sad, anxious, or hurting. Writing even though I’m not as fast anymore and get distracted easily. Doing the errands even if various joints are being stupid. I admit, I’m getting pretty damn jealous of all the people who can just walk all the places and not wind up with yet another swollen hurty bit. I understand some of my friends with various chronic diseases a lot better now and I am bowing to their example and expertise a lot. One particular lady is everything I want to grow up to be – I’ll always be a huge fan of hers – she especially rocks the art of doing it anyway.

It is a really hard adjustment to do it anyway. I’m getting there with the writing, even if this post is pretty much the only writing I’ll do today. It’s harder with the other stuff. Right now, I’ve got my feet up with an ice pack on my ankle hoping for some relief and I’m not really finding it. If anything, it’s sort of making it even more uncomfortable. Today was also leech day – where I go get all my blood let for science (and to make sure all my levels are good *fingers crossed my sed rate is finally going down*) and I forgot to take the bandage off – something about their bandages and my skin do not get along. I have a red splotchy place everywhere the adhesive touched my skin. But, I was hydrated enough to make the stick easy and it doesn’t look like I’m even going to bruise this month which is super yay. I never thought I would ever get used to being stuck in the arm every month without even a pretty picture to show for it but, there you go.

Honestly, I’ve done really well keeping the writing going. I’m at very nearly 17k words for the month and I’m super proud of myself. I’ll be even more proud if somehow I can beat my February totals. This past week was my busiest week with life stuff though so hopefully, next week I’ll do a lot more getting stuff done. After the first part of the week anyway. I have a very important lunch date with an old friend I haven’t seen in a really really long time. Pretty sure since before I had kids. I’m very much looking forward to playing catch up.

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Filed under Life, Rheumatoid Arthritis

So Far, So Good

I’ve been really good at keeping up this word counting and I’ve only missed one day this month writing and that was a holiday. I’m going to have missed days sometimes. Apparently, I’m having my November now. I’m more than on track to hit 50k this month and I’m really pleased about that.

Yesterday was a day full of going and walking and I paid for it last night. I’m glad we went but I feel bad as I move at about the pace of a snail and the poor dear husband moves more like a gazelle and so do my very tall kids. By the end of the day, I felt about like I felt one the day my very first flare started and we began the process of trying to find out what is wrong with me.

I still managed to get words in on Hunter’s Hell though, a little better than 800 of them. I really do love where this story is going. I feel a little guilty doing some of the horrible things to my characters that I do but they also need to happen in order for my lovelies to grow. That’s always my biggest complaint when I read a series – the characters don’t grow or they lean on one particular crutch too much. That doesn’t mean I don’t love the stories or those writers, just that it’s a thing that I note and remind myself to try to avoid.

I adore JD Robb’s in Death series – love em all. BUT, I do think Eve’s constant misunderstanding of common idioms is ridiculous at this point and she’s going to run out of them. In the latest, it wasn’t so much the idioms that bothered me but the botchery of Hitchcock’s name. Sure, not everyone is a movie buff but this isn’t the first in Death book where Hitchcock is mentioned. So it irks me. It irks me just a little as it’s one irksome thing in an otherwise fun book. They are fun, fast reads even with the occasional bout of come on that get under my skin. The most recent installment is fun, not particularly groundbreaking as the basic idea has been done before many times, but it’s a solid outing with Eve and Roarke. Really though that’s the best part of stories – I can read the same story by eight different writers and they’re all different and amazing in their own way.

I’m hoping to get more words in today but if I don’t, I’m not terribly concerned. At least the kids are old enough to, more or less, let me work and not stop me every three minutes to get them this or that or keep them occupied. They’re pretty good now at keeping themselves occupied.

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Filed under Books, Rheumatoid Arthritis, WIP, Writing

Processes and Projects

I’m routinely getting words on books and this makes me happy in ways I can’t explain. It’s been a long time – longer than I would like to admit – since I was writing with any real regularity. I tried to get back into the swing of things with two separate NaNoWrimos and it sort of almost worked. For a month or so. I’m coming up on a month of tracking my word counts for no one but myself and I’m actually doing quite well. I’ve got my spreadsheet with all its pretty formulas to help me measure down to the word – by project, by day, by week, by month. I love statistics. We’ll see if I’m still doing it in six months… If it gets these two books that are my current priority, I’ll be happy. I would really like it to stick around though – I have so many stories to tell!

Coming up, I’m going to be doing something a bit different. At least on Wednesdays. The other day I had a long discussion with another writer about my own process because she asked and I know I’m a bit of an odd duck in that I’m not an outliner. In any case, I’m going to start running a process spotlight on some Wednesdays I think.

My foot is very unhappy today. And my elbows. The elbows are a little less troublesome but I had to take the cane to get my youngest kid off the bus, as my one foot just feels broken. It isn’t, not even a little and there is no reason for it to feel like all the little bones in my foot are grinding to dust but, hey, yay RA. *sigh* Hopefully tomorrow will be better on that front.

I’ve taken a long enough break and I should get back to writing. I’ve broken the 2500 word mark, I’d like to hit 3k today if I can so I should get back to it.

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Filed under Rheumatoid Arthritis, Writing

Lost Days

Yesterday was mostly one. Not entirely, I did get a few hundred words on my non-priority project but I don’t remember doing a whole lot otherwise. Some dishes, a trip to the grocery, and a lot of sleeping. On the upside, today I don’t feel as congested or achy as I did yesterday. I’m thinking the barometer did some moving yesterday in preparation for today’s weather shift. So far, it really seems like my joints are fine in the cold (as long as I take my meds), only my bad knee gets mad when it’s raining, but pressure changes are terrible. I guess this is just another one of those things I’m going to have to get used to. It’s not like I didn’t have lost days before it’s just different now somehow. It feels like it’s harder to make up the losses than it used to be. Of course, it kind of is.

Before, a lost day was nothing to worry about and likely not really lost but spent doing house stuff or reading a book or doing something with the kids. Now, it’s a freaking event if we do a trip to the strip district for coffee, olive oil, and fresh tortillas (and a bunch of other stuff we probably don’t need but thoroughly enjoy) and I know I’ll pay for it the next day. I’m looking at the schedule for craft fairs for this summer and I’m debating a bit on how many I want to do or will be able to do. I was never very normal but I do very much miss being healthy. I miss when I could make up a day pretty quickly because my “day” really only took an hour or two of hard focused work.

I’ve actually managed to write every day this month so far – but it’s early days yet and we’ll see if I can keep it up. I’m going to try though – at least 300 words but better if it’s more than that. I have too many things I want to write, too many stories to tell, and I just feel like I need to get them to paper (or file) sooner.

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Filed under Rheumatoid Arthritis, Writing

January Wrap Up

This month has been a pretty busy, pretty decent month!

On the writing front, it’s been the best month I’ve had in a very very long time. I didn’t start counting my words until half-way through the month so it isn’t exactly complete and I didn’t write every day but I only missed three days in the last half of the month and that’s damned good. I wrote 12,585 words in the second half of January and I’m really pleased with that. I also finished the zero draft of Hunter’s Hell which I started in November so, I might be behind there but the bones of this book are solid and awesome. I submitted Purgatory’s Queen (sci-fi/thriller) and Demonborn (dark fantasy) so fingers crossed all over the place there. I also put in some words on the Gods of the Fallen first draft. I’ll be working both HH and GOTF first drafts for the next month or two. I’ll be very happy if HH is done mid-March.

On the health front: I’ve come a long way in the last six months but I’m not all the way there yet. I can do laundry all by myself now and stand up long enough to do dishes without using the tall stool to perch on. I can type at 3/4 speed for half an hour at a stretch. I’m not back to normal but I’m so damned happy to be where I’m at! I’m even exercising again. Slowly, gently, but exercising. I turned on my calorie counting app and hooked up the Wii Fit board. I’m only down about a pound but at least I’m back to going the right direction. Being off the prednisone is great but I think we’re probably not finished adjusting the methotrexate just yet.

The kids are doing well in school. Husband is the awesome. Husband’s family pulled through their recent health stuff, even if it didn’t exactly go as planned. This might be the closest month I’ve had to normal since my Dad died. ❤  Hopefully this month is even better!

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Filed under Books, Interesting, Life, Rheumatoid Arthritis, WIP, Writing

A Week in a Day

I got more words yesterday than I did during all of last week. That’s not terrible. I didn’t get many words today but I did discover that weather shifts and running errands don’t really play well together. I did snag a pair of New Balance shoes on super clearance to wear inside the house to do my exercise because my good shoes are out of the house shoes and I need more arch support than socks can give me and I’ve got somewhere in the neighborhood of 80 pounds to lose so said exercise is important. I also found two additional eye shadow brushes on super clearance to add to my kit that I’m probably going to keep for sparkly, shiny stuff.  Hopefully, I’ll get a few more words in this evening during Flash because that show might still by my kid’s favorite but it’s gotten pretty irksome for me but Black Lightning comes on right afterward and I’m looking forward to that.

I got the Wii Fit board out, charged up, and working again (even if it is terribly mean to me) and I started up the MyFitnessPal app again. Counting calories is my best weapon, even if it means eating all the veggies so I don’t eat all of the gummy bears. Of course, not buying the gummy bears in the first place helps with that too but I really do love me some gummy bears. In any case, I’m trying.

I’ve given myself some rules on the writing front – if I want to work on the project that’s giving me twitchy fingers, I’ve got to put in no less than 1k on the projects that need to be done soon. It worked yesterday anyway and it’ll likely work tomorrow and, if I just keep going, I’ll get all the books done. Well, no, I know I’ll never actually get all the books in my head written – there are too many and I keep finding new ones. I just hope I can keep finding people who might want to actually read them!

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Filed under Health, Life, Rheumatoid Arthritis, Writing

Water is better when it’s coffee

Really.

However, it does seem that adding water to my schedule has minimized my Thursday discomfort almost as much as it helps my monthly blood draws go easy. Even with the increase in my dosage this week, I’m not having my usual weekly feel bad. I have a little tummy upset but not enough to keep me from a celebratory jalapeno burger.

We increased the dosage of methotrexate so I can get completely off the prednisone. I did make the doctor laugh though when I explained my problem with prednisone. It makes me hate everyone. It sounds ridiculous but it’s true. I’m super glad it helps and gets me through the flares and my body’s overreactions but it just makes me so angry that I’m even gladder to see the end of it. Hopefully, the new dose gets my numbers in order as I’d like to stick to this one thing that I know is nicely covered by my insurance and not risk some of the ridiculous numbers I’ve heard from other ladies with RA.

I did not make my word goal this week and I’m ok with that. I had a huge computer malfunction. Fortunately, a reset worked just fine, even though it took me all day to get things reinstalled. Technically, I’m still not done doing that but I’m not complaining because I didn’t lose any of my work and I got a reminder about making sure I do my backups religiously.

Really, it’s been a good week overall and it looks like I’ll actually have both kids back in school without any delays or closings or snow or flooding. I don’t know if I remember the last full day the kids had. I’ve got to get readjusted to the ridiculously early start times which is less than ideal but it’s also great to get back to our schedule.

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Filed under Life, Rheumatoid Arthritis, Writing