Thumb Splint arrived!
My thumb splint finally came! It’s certainly not an all the time thing and I’ve already ordered a second one because it’s like night and day with typing. My fingers aren’t so bad most of the time but my thumbs make me feel like having thumbs is more than overrated. I’m still not up to speed but it’s definitely better than 50 words per minute! I might just make NaNoWriMo work this year after all (and be able to get back to doing some transcription stuff too maybe).
I’m doing some preparation for NaNo this year – mostly in the form of research because I have a pretty good idea of the major plot points in the story this year. Which likely means that it will go completely sideways and the book I think I’m going to write will not be what gets written. I do love the research part of writing – especially when it’s strange or mythological stuff I’m researching. This time around, it’s mostly underused monsters. I’m pulling some from wrong sorts of places on purpose but I promise, it’ll make sense that they are where they are.
If I manage to finish this book’s zero draft in November, I’m probably going to try again in January and do the second book of the Eldercynne trilogy – which is all it’s planned to be at the moment. I have about half a draft on that one which is why it isn’t a nano book.
If you are also doing NaNoWriMo and want to be buddies, I’m Shade53. I don’t spend time on the forums really because I get sidetracked and sucked in too easily and I have enough distractions with all the other stuff I’m supposed to get accomplished in a day but I’m happy to message or race.
And that’s a couple hundred words with no screaming thumb. I will, however, need to cut a little piece of fleece to cover the strap – it’s digging in just a bit on a tender spot on my wrist – but what a difference a little bit of fabric and some metal can make!
Things are getting back to normal-ish at my house. I can do dishes without dropping them, I’ve only needed my cane one morning this week, I can go up the stairs like a typical person (not down yet though, I’m still going sideways down the steps), and I can type. For five minutes at a stretch and half the speed I’m accustomed to. I’m hoping that, by NaNoWriMo (which I AM doing), the medicine I’m on will be working well enough to help me finally get the sequel to Hunter’s Crossing written and not languishing in a pile of notes, snippets, and scenes.
I ordered a thumb splint that I hope will be here in plenty of time to adjust to wearing it and typing with it. Most of my problem is in the left hand, thumb, wrist, and elbow. I’ve looked into thermoskin gloves, wrist warmers, and stabilizers. I’m pretty willing to try anything. I’ve looked into speech to text but I haven’t found one I like enough to use (plus I’m still trying to get over the whole talking to myself like an idiot thing – I write because I sound stupid when I speak dang it!).
I’m having some of those moments, I can feel the depression trying to say hello, trying to sneak in and take root. This isn’t an unusual thing. In fact, it happens pretty regularly but this year it’s compounded by the RA, the weight gain because I’m struggling to be active when moving hurts (and food is my blankie), and the general feeling of uselessness. Nothing has really worked to dig me out in the past so I’m trying something new. It seems silly but it’s not not working. I haven’t worn makeup for about two decades and, being a writer, there’s not much call to get properly dressed every day, so I’m trying to do that too. I figure, if I’m going to be healthier than I’ve ever been (and I must be as I’ve seen ALL the doctors in the last few months lol), I might as well try and look it. I’m still not leaving the house too much so no one really gets to see it but, strangely, it’s making a difference anyway.
I got tagged in those pretty picture things on FB by a bunch of ladies. I won’t do them as I haven’t taken a picture I like in more than a decade but they partially inspired the whole trying to look like a functional person thing. For years, I’ve extolled the value of fake it till you make it but I don’t always follow my own advise. I’m trying to. I’ve joined a few groups – one focusing on getting healthy and an RA support group – and I like both of them a great deal. This year has been one of the worst I’ve had but that doesn’t mean I can’t make something good come from it before it’s done.
I am definitely more emotional than usual – whether it’s the year, the situation, or the prednisone, I have no idea. It’s also getting to be the time of year when I get the most sentimental and weepy anyway – creeping up on the anniversary of my mother’s death. I’m missing my dad something fierce as he was my go to when I have a crappy day or wanted to vent or just talk about nothing. I’m struggling with this year in general but this season especially. It’s weird because this is my favorite time of year complete with my favorite holidays and I haven’t even started decorating yet!
I know the meds are not doing enough yet – my hands and feet feel like fire, it’s hard to walk, and I am ending every day in tears without much that can be done. I have a call in to my doctor to see if there’s something we can add, change, whatever but, in the meantime, it is what it is. Honestly, it was worse earlier in the year but we’re creeping back up on that level.
I did buy a cheapo cane to use and decorated it with stickers – which my oldest thought was silly since the first stickers were cartoony girl heroes – Wonder Woman, BatGirl, Catwoman, and Harley Quinn (not really a hero so much but still) and my last Supernatural sticker. Husband put one on that says “Stupid Fast” to be funny. Which it is. Eventually, I want to get something interesting and pretty – or at least more stylish – but for the now, covered in stickers works for me. I’m on the hunt for a Hedwig sticker and a Death’s Head Moth sticker.
I’m trying not to get too down and not writing down the poetry in my head – no one wants to read that mess! It’s hard though. Even knowing that I always dip a little into depression this time of year, I can’t seem to stop myself from doing it and all the losses, all the pain, and all the shit of this year, really really isn’t helping. I’m definitely more touchy than usual and it’s hard because it’s confusing to the youngest boy who really just wants me to be able to do stuff properly again (me too, kid!). And that’s about all the typing I have in my fingers today.
I didn’t get much in the way of words down yesterday but I did get some background work and some research done for Hunter’s Hell (working title for Lei and Blake’s second story). I’m really probably too pleased with some of the ideas I’ve been having for it and I know not all of them will make it into this book but hopefully, there will be more stories to tell when it’s done. Yesterday, my hands were really sore. Today is better but today is also errands day so I’m probably not going to get much done outside my head.
I don’t know if side effects tend to show up 30 hours after taking methotrexate but it looks like that’s what happens with me (at least on the first dose). It wasn’t too bad just a headache and some general stomach upset. Yay Pepto and Yay sleep, even if I’m not sleeping well. If this stuff makes the hurting finally stop, a little weekly headache is more than worth it. Now I just have to hope that next week is as kind to me. I know it’s going to take a while before this stuff starts doing what it’s supposed to do and I’m on oral prednisone until then which I really don’t like but it is what it is. I do need to pick up a cane today as I’ve been using my late father’s and there’s a bit of a wiggle in the handle and it belongs to my oldest son and I don’t want to break it. Hopefully I won’t need it much longer but my ankles and knees and feet just aren’t always sturdy, especially when I’m first standing up after sitting for a bit and I don’t really know what it will be like in a month or a year but, like my crutches, it can’t hurt to have a cane I can use laying around.
I found an online support group that seems interesting and, thankfully, science based! – though I feel a little guilty as I haven’t had the fight so many have had in getting my diagnosis. Not that my body was going to let anyone argue with all the crazy swelling moving around. I think it would have taken a lot longer if I hadn’t reached a place where my hands were so swollen they couldn’t move only about a week after my feet did the same thing. I feel a little guilty that I don’t have it quite as bad as some – it’s sort of like my son’s autism. I always feel a bit guilty because I’m not dealing with the severity that some families deal with. I know how fortunate I am, we are, in all the things.
Went to the first appointment with rheumatologist yesterday. I didn’t learn anything definitive. He does say I have some sort of inflammatory arthritis. Kind of knew that already. Now we just have to figure out which one because apparently there are a lot of them. So we did blood work out the ears, well, out the arms. 13 tubes! More X-rays. And now I have to wait for a while to find out anything more. This is one of those offices that only calls when the results are immediately icky. I’ll find out all the things when I go back.
He did prescribe a new medication hopefully that will help. I don’t know yet right now it seems there are less irritated places but the places that are irritated hurt more. But we’re only on the beginning of day 2 and it could take a while.
So think I found a reasonably decent speech-to-text software. It definitely works better than what came on my computer. In fact, I’m using it to write this. I can actually type today but I’m trying to put this through the courses while I’ve got a free trial so I can decide whether or not I want to keep it. The hardest part about speech-to-text software is knowing that you sound like an absolute idiot talking to your computer when nobody’s there but the dogs. For those interested, I’m using http://www.LilySpeech.com and so far it does pretty well. There are some little irritants but definitely recognizes my speech better than the one that came on my system and it recognizes when other people are talking to me and what they are saying. However, it is not as funny as the one that came on my system that just gives me random gibberish.
I’m going to give a go with the writing today and see how far I can get with poor Leilani. Fortunately I really like writing her, unfortunately, I have to do terrible things to this poor girl but hopefully, you people will enjoy it later.
I’ve read the book a few times. The first time, I was too young and a lot went over my head. Really, you just don’t have the life experience at eleven or twelve to really take in all of it. The second time around was a deeper, more in depth understanding. The third, yet again. I feel I’m likely about to read it again.
For years, my go to when I’m having a panic attack has been to recite the litany against fear. It’s not infallible but it does often take me out of my own head enough to at least lessen things. Now, with everything going on, it’s a very different part of Dune that seems to be taking root. My whole body seems like it is becoming a pain box. I don’t know who’s holding the gom jabbar but I swear, I’m human and we can be done now.
Fortunately, I’m now only a week away from my first appointment with a rheumatologist so we can start getting to the bottom of things, at least officially. I’ve learned a lot over the last almost two months though, about myself, my family medical history, and about the most likely culprits of all this nonsense. I also learned that ibuprofen makes me rashy. Yay me. I’m not too worried about long term prognosis really. I know the likely suspect is rheumatoid arthritis and I know that it isn’t as scary as it used to be. Medicine is an interesting and wonderful field and I have great doctors, I’m just really ready to have an official name and a treatment plan. At least then, I’m doing something more than trying to do some yoga poses or just muscle through like I should do.
Currently, I’ve got a nasty little end of summer cold to boot so, with the kids back in school, I’m curling up with my warm puppies and getting some sleep and trying to kick this stupid sniffly, drippy bit away so I can get back to just being hurty. One thing at a time please, silly body. Perhaps I’ll dig out the movie tomorrow and give it a watch. I could watch the Kyle MacLachlan version a hundred times. (And yes, it is very different but there is a place for both book Dune and that movie Dune in my life).
Filed under Books, Health, Life
So far today, I’m having a pretty good day, physically. Which is really nice and a bit of an outlier event over the last month and a bit. I’m certainly not going to complain and hopefully take advantage of it! It looks like today might be a real writing day!
This past weekend I did another local event and it went pretty well, even if I did move like a geriatric snail. I may even have to get more books in before my October and November events. You can’t really ask for better than that. I’ve been quite surprised by how much fun I’ve had doing them – I’m sure it helps that my oldest child has been super helpful being my minion for these festivals and fairs. It won’t be too much longer before he’ll be off on his own adventures so I think I’ll enjoy his help while I can.
Next year maybe I’ll be in a place where I can do some bigger events that aren’t maybe as local but certainly might be a little more targeted to readers. That’s the goal anyway. Now I’m going to go write while all the joints are feeling loose and limber enough to type properly.
I’ve been a bit missing. I’ve been having some health related issues that are getting themselves figured out and making some really neat things as I have several upcoming festivals. I added a calendar function to my website that I’m still figuring out but, be that as it may, come and see me in the next two months! If you aren’t local to me, no worries, I’ve got an online appearance (and a giveaway too!).
Christmas in July with Boroughs Publishing Group!
Come play with me and a lot of other great authors on Facebook for Christmas in July! I’ve got a present for some lucky reader!
My time slot is at 6:30 EST and I’ve got a very pretty bauble and a very pretty book for someone – paper not just digital this time – but you have to come play to win!
July 22, come visit with me and a lot of other great vendors at the Burgettstown Trail Festival!
Next weekend, me, my books, and my artsy craftsy things over at Nesting Dragon will be at the Burgettstown Trail Festival from noon to 9! (I’ll be at space #24)
On July 30th, From noon to 8pm, at the Serbian Picnic Grounds in Weirton, WV, I’ll be at the St Joseph the Worker Italian Festival.
And on Saturday, August 12, from 11am to 6pm, I’ll be at the 54th annual Peach Festival at St Thomas Episcopal Church in Weirton!
It’s shaping up to be a very busy end of summer. I’ll be much happier when all of my pieces and parts cooperate with me and not yell at me. So, I hope to see some of you – but if you can’t make it to any of the events, my Etsy shop is most always open.
By the time I get the schedule figured out to do all the things I need to be doing, school will be back in session. That’s ok. We’ll have fun. The youngest is ready to go hunt Pokemon again. The oldest is being a teenager (but at least he’s not half as teenagery as I was). I’m working on a few new crafty things but I really don’t like how they’re turning out just yet so it’s back to sewing machine with me. I’m working on a new book that I like very much. I’m doing a lot of figuring though – between the colony ships, timelines, and a whole new set of mythologies to work up, most of the work so far has been in my head. Well, technically it was in a notebook but Alfred decided I took too long at the bus stop one morning and now that notebook is gone.
It’s been really hard to be productive this year. I find myself all the time wishing I could send a few pages to my dad so he could tell me if it made any sort of sense at all. It was a huge benefit for me to have someone who didn’t read fiction reading my fiction. If something wasn’t explained adequately enough, he was quick to let me know so I could do better. And he was always supportive. He never tried to get me to write a different “Gendre” (that’s genre with a random D in it? I don’t get it either but now I miss it). He certainly tried to get me to read more nonfiction but he was only supportive with the writing. It’s weird knowing I don’t have that anymore. Yes, my family is supportive in their own way – mostly, that they let me do it without too many interruptions but it’s not the same thing as having someone who makes a point to ask if you’ve gotten any words on the daily. It’s stupid because that irritated me when I was struggling to write and now, I miss it terribly.
I can’t just stop everything though, can I? not if I want to reach the goals I set for myself. And I’m going to reach them. It may take me another 20 years but, so be it. I’ll get there. I’m doing a marathon, not a sprint. And now I have to go write someone else’s obituary. 😦 RIP to Adam West.
And now I have to go write someone else’s obituary over at the Geek Girl Project. 😦 RIP to Adam West.