Tag Archives: life

Girl stuff is difficult

I’ve never been a real girly type girl. Growing up, I didn’t like the frilly dresses, rebelled against pink, and preferred my hightops to mary janes – much to my poor very girly mama’s dismay. I think that’s one of the reasons my mom was all for my hippy leaning goth aesthetic as I got older – I wore dresses again and flouncy skirts and beautiful heels – even if they were all black in color, they were fancy, flouncy, and twirl-worthy. I used to wear makeup every day and do my nails and hair, the whole shebang. And I haven’t done any of that in 17 years or so.

I haven’t worn any sort of makeup on a regular basis since I was pregnant with my oldest kid. I’m not sure if it’s the medication or the RA that’s making my skin stupid – red splotches here, dry there, greasy over there, and just an uneven mess – but it’s awful (even if the husband swears he can’t tell because he’s a very sweet liar face). So, I’m trying to be a little more put together and I’m mostly discovering that either I’ve forgotten how to do makeup entirely or makeup has seriously changed in all that time. Really, it’s probably a little of both. And apparently, I still prefer the hippy leaning goth aesthetic but sparkly. I really love the sparkly.

Tutorials and videos make the whole process look easy – it should be easy – but it’s not. Everything looks like a muddled fuddled mess when my skin isn’t allergic to it in the first place. I’ve been picking up samples all over the place as I can, trying to find things I can actually use but mostly, I’m just slapping stuff on my face, covering most of the red places, and being annoyed that it doesn’t look right. My nails are brittle and stupid and, apparently, I’m not supposed to use acrylics on my meds. Seriously? Bah. My hair is too fine to do anything with. Basically, I’m a ball of complaints and half of what I try makes things worse, not better.

I did get a really great witch hazel sample from Maple Holistics that, so far, I’m not reacting to, even though it does have aloe which I usually react badly to, but it needs a week or so to really know for sure. I’ve had more samples work out than not which surprises me a lot – maybe my skin is getting a little less reactive in my old age. Well, at least on my face. I am having some other skin issues I’ve never had before but they’re all part and parcel of either my disease or it’s treatment so, what can I do but work around that or cover it up.

I do wish it wasn’t so complicated or difficult (or freaking expensive!) to make myself feel pretty. And no, there will be no pictures until I’m confident that I don’t suck at it (and until I’m looking at smaller numbers on the scale). I wish I could get my favorite V ladies – Val Garland and Ve Neill – in a room for an hour so they could teach me how to do this properly as I am a very bad Instagram, YouTube, and Pinterest student.

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Filed under Life, Rheumatoid Arthritis

So far behind

I know there are things I usually have done by now that I am nowhere near finished with. It’s driving me a little bit nuts. The weather is being a bit weird and my body is feeling it in very weird and new to me ways. I did figure out what to make the kids this year but they’re the only ones getting mama-made presents. I just don’t have it in me this year to do more and that’s okay. Hopefully, I can still manage a straight (ish) line with my sewing machine lol. I won’t post anything about it until after Christmas as the youngest child lurks here quite often.

I’m working on the yearly wrap up and next year’s goals and stuff and there’s not a lot of good in this year and I will be so glad to see it go. Last years goals didn’t even come close to being met. There was a lot that was out of my control but I really could have done better. 2018 has no choice but to be better than 2017. Except, I’ve said that every year for a few years and each year has shown me how much worse it can get so maybe this year I’ll say something different come New Year’s.

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Filed under Crafting, kids, Life

What a Difference

medication (or the lack of it) can make! We’ve started tapering my already low dose prednisone and I’m feeling a lot less … boom. I’m not exactly sure how to explain it. It’s like I was feeling things too big if that makes sense. It couldn’t come at a better time as I always get weepy in December and this year, Thanksgiving is already going to be difficult. I’m a little more sore and achy than I was before but I’m definitely willing to push through that in exchange for not flipping out over everything or feeling like I want to cry all the time.

I’m definitely not going to win NaNoWriMo this year but I will have a draft for Leilani and Blake’s second book before the end of the year and I’m really happy with that. I have a lot of projects in my head, it’s just a matter of putting them on paper. It used to be I could work five projects at once but my brain is not working with that right now so, I’m going to have to focus on just one. If I can write a minimum of 500 words every day – which isn’t really that much when you break it down – I can get all of my projects finished. I’m really excited for some of them to get out of my head and into the hands of readers. I expect to have Hunter’s Hell finished by the end of the year and Eldercynne Knight by Valentine’s Day and Gods of the Fallen by my birthday. In that order. If I keep it in that order, maybe I’ll get done a little faster because I am super excited by Gods of the Fallen – some of the ideas are just so neat to me. I’d also like to get back to my poetry a little more but I have to figure out how that will fit into my writing schedule.

I think there’s more of my anxiety and depression rearing up than I usually like to admit to. I don’t think all of my sleepiness is just RA related and I know my inner critical voice is just going bananas over every misstep I’ve ever made in my life. It’s not like this part of things is new, I should be old hat at this by now and have it under control already. Except we all know that’s not how these things work in the real world.

Tomorrow is Thanksgiving and I’ve got plenty to be thankful for, even if this year has been just a gaping hole of I’d really rather not. The kids are awesome, the husband is awesome, they’re all healthy and that’s enough for me right now. I hope you all have a wonderful Thanksgiving and get to spend some time with family and eat some yummy stuff. Tomorrow, I make pumpkin pie and a veg and that’s all anyone is expecting of me and that is glorious.

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Filed under Health, Interesting, Life, Rheumatoid Arthritis, WIP, Writing

Better Enough

Things are getting back to normal-ish at my house. I can do dishes without dropping them, I’ve only needed my cane one morning this week, I can go up the stairs like a typical person (not down yet though, I’m still going sideways down the steps), and I can type. For five minutes at a stretch and half the speed I’m accustomed to. I’m hoping that, by NaNoWriMo (which I AM doing), the medicine I’m on will be working well enough to help me finally get the sequel to Hunter’s Crossing written and not languishing in a pile of notes, snippets, and scenes.

I ordered a thumb splint that I hope will be here in plenty of time to adjust to wearing it and typing with it. Most of my problem is in the left hand, thumb, wrist, and elbow. I’ve looked into thermoskin gloves, wrist warmers, and stabilizers. I’m pretty willing to try anything. I’ve looked into speech to text but I haven’t found one I like enough to use (plus I’m still trying to get over the whole talking to myself like an idiot thing – I write because I sound stupid when I speak dang it!).

I’m having some of those moments, I can feel the depression trying to say hello, trying to sneak in and take root. This isn’t an unusual thing. In fact, it happens pretty regularly but this year it’s compounded by the RA, the weight gain because I’m struggling to be active when moving hurts (and food is my blankie), and the general feeling of uselessness. Nothing has really worked to dig me out in the past so I’m trying something new. It seems silly but it’s not not working. I haven’t worn makeup for about two decades and, being a writer,  there’s not much call to get properly dressed every day, so I’m trying to do that too. I figure, if I’m going to be healthier than I’ve ever been (and I must be as I’ve seen ALL the doctors in the last few months lol), I might as well try and look it. I’m still not leaving the house too much so no one really gets to see it but, strangely, it’s making a difference anyway.

I got tagged in those pretty picture things on FB by a bunch of ladies. I won’t do them as I haven’t taken a picture I like in more than a decade but they partially inspired the whole trying to look like a functional person thing. For years, I’ve extolled the value of fake it till you make it but I don’t always follow my own advise. I’m trying to. I’ve joined a few groups – one focusing on getting healthy and an RA support group – and I like both of them a great deal. This year has been one of the worst I’ve had but that doesn’t mean I can’t make something good come from it before it’s done.

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Filed under Life, Rheumatoid Arthritis, Weird, Writing

Well, OK then

I didn’t get much in the way of words down yesterday but I did get some background work and some research done for Hunter’s Hell (working title for Lei and Blake’s second story). I’m really probably too pleased with some of the ideas I’ve been having for it and I know not all of them will make it into this book but hopefully, there will be more stories to tell when it’s done. Yesterday, my hands were really sore. Today is better but today is also errands day so I’m probably not going to get much done outside my head.

I don’t know if side effects tend to show up 30 hours after taking methotrexate but it looks like that’s what happens with me (at least on the first dose). It wasn’t too bad just a headache and some general stomach upset. Yay Pepto and Yay sleep, even if I’m not sleeping well. If this stuff makes the hurting finally stop, a little weekly headache is more than worth it. Now I just have to hope that next week is as kind to me. I know it’s going to take a while before this stuff starts doing what it’s supposed to do and I’m  on oral prednisone until then which I really don’t like but it is what it is. I do need to pick up a cane today as I’ve been using my late father’s and there’s a bit of a wiggle in the handle and it belongs to my oldest son and I don’t want to break it. Hopefully I won’t need it much longer but my ankles and knees and feet just aren’t always sturdy, especially when I’m first standing up after sitting for a bit and I don’t really know what it will be like in a month or a year but, like my crutches, it can’t hurt to have a cane I can use laying around.

I found an online support group that seems interesting and, thankfully, science based! – though I feel a little guilty as I haven’t had the fight so many have had in getting my diagnosis. Not that my body was going to let anyone argue with all the crazy swelling moving around. I think it would have taken a lot longer if I hadn’t reached a place where my hands were so swollen they couldn’t move only about a week after my feet did the same thing. I feel a little guilty that I don’t have it quite as bad as some – it’s sort of like my son’s autism. I always feel a bit guilty because I’m not dealing with the severity that some families deal with. I know how fortunate I am, we are, in all the things.

 

 

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Filed under Life, Rheumatoid Arthritis

Under the influence of Dune

I’ve read the book a few times. The first time, I was too young and a lot went over my head. Really, you just don’t have the life experience at eleven or twelve to really take in all of it. The second time around was a deeper, more in depth understanding. The third, yet again. I feel I’m likely about to read it again.

For years, my go to when I’m having a panic attack has been to recite the litany against fear. It’s not infallible but it does often take me out of my own head enough to at least lessen things. Now, with everything going on, it’s a very different part of Dune that seems to be taking root. My whole body seems like it is becoming a pain box. I don’t know who’s holding the gom jabbar but I swear, I’m human and we can be done now.

Fortunately, I’m now only a week away from my first appointment with a rheumatologist so we can start getting to the bottom of things, at least officially. I’ve learned a lot over the last almost two months though, about myself, my family medical history, and about the most likely culprits of all this nonsense. I also learned that ibuprofen makes me rashy. Yay me. I’m not too worried about long term prognosis really. I know the likely suspect is rheumatoid arthritis and I know that it isn’t as scary as it used to be. Medicine is an interesting and wonderful field and I have great doctors, I’m just really ready to have an official name and a treatment plan. At least then, I’m doing something more than trying to do some yoga poses or just muscle through like I should do.

Currently, I’ve got a nasty little end of summer cold to boot so, with the kids back in school, I’m curling up with my warm puppies and getting some sleep and trying to kick this stupid sniffly, drippy bit away so I can get back to just being hurty. One thing at a time please, silly body. Perhaps I’ll dig out the movie tomorrow and give it a watch. I could watch the Kyle MacLachlan version a hundred times. (And yes, it is very different but there is a place for both book Dune and that movie Dune in my life).

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Filed under Books, Health, Life

When it rains

I’m not getting much in the way of writing done, though I did have a great typing day the other day. I’m learning a lot through my research and coming up on a lot of frustrating things. The 31st can’t get here soon enough. That’s when I see the rheumatologist. On the upside, I found another doctor who gave me a clean bill of health for their specialty – and we ruled out any problems with my veins too. But, where there is an up, there’s a down. I’ve developed a rash. It looks a lot like the dermatitis I get when my skin is allergic to something stupid like aloe or various fragrances but there’s a real chance it’s related to all the ibuprofen I’ve taken in the last month. I’m currently doing an elimination test and for the first time in my life, I’m really hoping I’m still itchy in a few days. I’m already feeling the difference a bit and I was certain that the ibuprofen wasn’t doing much. I was wrong.

I feel bad because I can’t do the things I’m used to doing around the house and in general. It is what it is and one of these days I’ll get it all figured out and we’ll get it under control and life can find a new normal that includes being able to do the things I need to do.

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Filed under Health

So far, So Good

So far today, I’m having a pretty good day, physically. Which is really nice and a bit of an outlier event over the last month and a bit. I’m certainly not going to complain and hopefully take advantage of it! It looks like today might be a real writing day!

This past weekend I did another local event and it went pretty well, even if I did move like a geriatric snail. I may even have to get more books in before my October and November events. You can’t really ask for better than that. I’ve been quite surprised by how much fun I’ve had doing them – I’m sure it helps that my oldest child has been super helpful being my minion for these festivals and fairs. It won’t be too much longer before he’ll be off on his own adventures so I think I’ll enjoy his help while I can.

Next year maybe I’ll be in a place where I can do some bigger events that aren’t maybe as local but certainly might be a little more targeted to readers. That’s the goal anyway. Now I’m going to go write while all the joints are feeling loose and limber enough to type properly.

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Filed under Event, Life

Updates All Around

Set up at the Italian Festival!

I had another craft fair this past weekend and I sold a few more books which is always nice and met some very interesting people. I have to admit, I am enjoying the craft fairs more than I thought I would, even with all the other issues I’ve got going on right now. Which are much more plentiful than I’d like, for sure.

I have another craft fair coming up on August 12th also and that should be both busy and fun. I honestly never thought I’d be looking forward to events like this – it’s been a very long time since I was comfortable peopling this much so I guess I’m getting somewhere after all these years. I’m not ready for Steel City or Parsec just yet but maybe soon! (ish)

Fabric sculpture Ragamuffin is up at Nesting Dragon.

I put up a bunch of new stuff over at Nesting Dragon – I’m really enjoying the fabric sculptures. I think the Nazgul and Shadow are my favorites (Shadow is all mine and not for sale lol) but I’m branching out a bit and I’ve got some ideas… Hopefully, I’ll manage to get one done before the Peach Festival and see how it plays.

On the health front, this month has been one long round of why do I hurt. It started with the left knee, when through the feet (with cellulitis of all things), through the ankles, the other knee, and then the wrists and hands. I’ve had x-rays, blood work,  more ibuprofen than I’ve taken in my entire life leading up to this (maybe an exaggeration…), and a whole lot of questions. The only thing I know for sure is that I have some arthritis in one knee, stupid tiny veins, and a predilection for bruising. I had yet another appointment today with the orthopedic guy and I walked out with some probably nots, a script for more bloodwork, and a referral for yet another guy. It’s really a frustrating process and I’m not actually getting solid answers, just suggestions. But we think fibromyalgia is ruled out at least so that’s something. Now I have to visit a rheumatologist and we’ll play another round of a million questions. Honestly, rheumatoid arthritis would make sense with everything but I’m not calling it until a doctor does. As of now, it’s just one possible answer. The words don’t matter so much as having a plan of attack. That’s what’s bothering me the most – not having a solid plan of attack beyond try to weigh less. In the mean time, I’m just muddling through and playing with speech to text software because typing a lot hurts (I’ve split this post into three sittings as it is).

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Filed under Books, Crafting, etsy, Event, Health, Life

Upcoming events and other things

I’ve got four events coming up, three local in person things where I’ll have my books and some of the things I make and one online Facebook party sort of thing where I’ll be giving away a book and maybe something special. The more I do these real world sort of events, the better I get at them. I’m not quite ready for the big events yet but I’m getting there. One of these days I shall get myself to Parsec and Steel City. Then I’ll think about the not so local – when my youngest is a little older also.

In July, I’ll be at the Follansbee Den on the 6th for lady’s night from 7-9pm and participating in a Facebook party on the 19th. My slot is scheduled for 6:30pm and I’ll have presents for some lucky individual. I’ll have more information on both of them as we get a little closer.

I haven’t been writing as much as I want because I’ve done something to my right arm and it hurts and by the time I’m done doing my “day” job, typing my own stuff doesn’t work so well. It’s slowly getting better and I probably just pulled something but it’s seriously annoying when I have things I want to get finished!

Gods of the Fallen is coming along really well. I’ve basically got my outline draft done – it’s certainly not readable. It’s basically a very loose sketch of how the story is going to work. There’s a lot that the draft is missing of course but this is the closest I’ll ever get to doing an outline of any kind. I don’t count this as an outline because it’s a series of the important scenes that I have to tie together and smooth out. It does give me a path of sorts to follow but I’ll veer off it likely as not in the rewrites.

Getting ready for the local events, I’m making more stuff that might fit a little better in the place where I live – less artsy and more functional but not a bit boring. It’s a little more difficult to work in the summer with all the kids wanting to go places, do things, see people. I should have worked harder to raise hermits (not really, it’s good that they don’t want to be like their mother in that regard).

Yesterday was a little rough. It was the first father’s day without him. It just sort of felt like a wrong thing for me. But, it is what it is and I’ve just got to get used to it.

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Filed under Convention, Crafting, WIP, Writing